The Mac version out:
http://wwwp.medtronic.com/Newsroom/NewsReleaseDetails.do?itemId=1301674650707&lang=en_US
http://wwwp.medtronic.com/Newsroom/NewsReleaseDetails.do?itemId=1301674650707&lang=en_US
April 4, 2011
I’m Not Clark Kent
... so that rules out superman too.
Clark is an ace reporter. I am not so good at the who, what, where, when, how but then come to think of it I never noticed Clark doing much actual reporting either. For actual play by play of the Medtronic social media event I think there may be more accurate recounting by the folks who were taking notes on laptops. Keep your eyes open I am sure the reports will start flowing in.
Here roughly the outline of the day. I try to add some color commentary:
We interrupted and talked over everyone of these folks and led them down all kinds of digressions. Scott Johnson drank all the diet Dr Pepper.
Probably the most shocking utterance was early in the day when Lane used a dirty word:
Yeah I know! The nerve of that guy. It sets off all kinds of emotional responses doesn’t it? But he didn’t mean it like ‘you diabetic scum need to be compliant and be in range all the time - how hard can it be? what the heck is wrong with you.’ He used it as an engineer.
Engineers speak a different language. To them control isn’t profanity. It is a process of transferring variability from one place to another. In the diabetes case to transfer some variability in blood glucose to variability in electrical current. Then to use that electric variation as feed back to have an impact on BG. He went on to talk about the success of that transfer in two time frames; first the moment and second over time. It was all very geeky and since I am a little geeky I thought it was all very fascinating.
More fascinating was the idea that some problems have been solved in other disciplines and those solutions can be transferred to diabetes care. Engineers transfer variability in large complex refineries to systems that manage outcomes in the moment and over time. It keeps the plants from blowing up. Possibly the algorithms, logic and processes used there can be brought to bear on the reality of your diabetes varying.
That I found this interesting is proves what I said, I am a geek at heart. So is Lane because he appreciated the need to minimize the space on a kids’ Bat Belts (and bat bellies) for all the stuff this may involve.
Somewhere in all this we got a first pass at the idea of data standardization. Since Bernard (BandYard) Farrell missed his flight to to a snow storm, the rest of us were more than happy to provide a little of the open honest feedback our Medtronic hosts were looking for. I happen to have ranted about data standards a bit, not as long as Bernard. He is the patients’ Superman of Data Standardization. I am more of the Jimmy Olsen on the beat. When I get into trouble he saves me. Interestingly the engineers seemed to agree that data standards would be valuable and I don’t know that the business / lawyers side of the equation feels the same way. I am fairly confident Medtronic heard the standards message, more than once. It is one of the messages I was there to share.
Clark is an ace reporter. I am not so good at the who, what, where, when, how but then come to think of it I never noticed Clark doing much actual reporting either. For actual play by play of the Medtronic social media event I think there may be more accurate recounting by the folks who were taking notes on laptops. Keep your eyes open I am sure the reports will start flowing in.
Here roughly the outline of the day. I try to add some color commentary:
- Amanda Sheldon, Director Medtronic PR opened and we got her talking and ran into the time that was allotted for:
- Katie Szyman who has been President of the diabetes business unit for a year and a half.
- Lane Desborough who’s title was Product Specialist. He is an engineer who recently joined MM from other larger industrial chemical engineering endeavors following his son’s T1 DX.
- Brad Monosmith introduced an app for that where that is diabetes and the long arm of the law keeps the device and the app from talking to each other.
- We took a picture:
- We talked more about a closed look and connectivity With Lane and Todd Robin director of CGMs.
- Dr Francine Kaufman spoke from clinical and medical research perspective and shared some research on a pump in Europe that turns off insulin with hypos. Due to certain Minister of Magic regulations we’ll just call it the Pump the Can Not Be Named. (I’m kidding FDA, it was a Joke, no need to call out the Dementors from the IRS)
- Dr. Richard Rubin of Hopkins talked about diabetes burnout. Great stuff. One key point - Joking around about diabetes is good (that FDA as the dark arts bit was strictly medicinal I swear! Oh wait that means I need to wait years for clearance before using it...)
- There was a cool tool tour of the sensor manufacturing plant.
We interrupted and talked over everyone of these folks and led them down all kinds of digressions. Scott Johnson drank all the diet Dr Pepper.
Probably the most shocking utterance was early in the day when Lane used a dirty word:
"Control."
Yeah I know! The nerve of that guy. It sets off all kinds of emotional responses doesn’t it? But he didn’t mean it like ‘you diabetic scum need to be compliant and be in range all the time - how hard can it be? what the heck is wrong with you.’ He used it as an engineer.
Engineers speak a different language. To them control isn’t profanity. It is a process of transferring variability from one place to another. In the diabetes case to transfer some variability in blood glucose to variability in electrical current. Then to use that electric variation as feed back to have an impact on BG. He went on to talk about the success of that transfer in two time frames; first the moment and second over time. It was all very geeky and since I am a little geeky I thought it was all very fascinating.
More fascinating was the idea that some problems have been solved in other disciplines and those solutions can be transferred to diabetes care. Engineers transfer variability in large complex refineries to systems that manage outcomes in the moment and over time. It keeps the plants from blowing up. Possibly the algorithms, logic and processes used there can be brought to bear on the reality of your diabetes varying.
That I found this interesting is proves what I said, I am a geek at heart. So is Lane because he appreciated the need to minimize the space on a kids’ Bat Belts (and bat bellies) for all the stuff this may involve.
Somewhere in all this we got a first pass at the idea of data standardization. Since Bernard (BandYard) Farrell missed his flight to to a snow storm, the rest of us were more than happy to provide a little of the open honest feedback our Medtronic hosts were looking for. I happen to have ranted about data standards a bit, not as long as Bernard. He is the patients’ Superman of Data Standardization. I am more of the Jimmy Olsen on the beat. When I get into trouble he saves me. Interestingly the engineers seemed to agree that data standards would be valuable and I don’t know that the business / lawyers side of the equation feels the same way. I am fairly confident Medtronic heard the standards message, more than once. It is one of the messages I was there to share.
That is a conversation worth having. We are the market. If we as the market start and keep demanding it it may happen. When there is a movement to standards, it will have to get past the whole secretive FDA dark arts process. I don’t expect them soon.
April 3, 2011
#medtronicDAF Disclosure Statement
I was privilege to be invited to join the folks from Medtronic at a social media even this April Fools day in LA. I went and I still don't know what the DAF in the hash tag stands for, Diabetes Air Force maybe?
I saw good friends from the Diabetes Online Community, some face to face for the first time. Met some new friends both from the DOC and Medtronic.
There are a couple of thing people ask me about events like this like: "Why you?" and "Are they seducing you to the dark side?" OK the second one doesn't typically get phrased with a fun movie reference but you get the idea.
I don’t know how they chose to invite who they did. It has to be hard. There are a lot of great voices in the DOC, I don't think that mine is any better than a myriad of others and we are not a Medtronic user.
I have traded emails and phone calls with the folks at Medtronic. They once asked if I would consider a post about their Lenny iPod app. I chose not to and shared some of the reservations I had as a parent about the app. They fixed some of the things I was concerned about but I still never wrote about it. (Yes I am an ungrateful arse.) Another time I did write about a driving program they sponsored. That is about it. I don't know why me.
I do think they are nice enough people. They have jobs and selling pumps make the pay checks happen. They seem to do those jobs very well. Except for Jonathan the sensor engineer. He was better than very good as a plant tour guide. If you have a kid who is interested in engineering, find a way to have'm spend time with that guy. He is funny, inspired by machines and process, very personable and a strong communicator. See: more evidence of the dark side, except I don't buy what he builds but man building them is a heck of a thing.
When asked about how they chose who to invite, they said they were looking to hear a variety of voices. They read the DOC daily. They know who's who. I know there were folks invited who couldn't make it. Medtronic did said they were looking for some honest feed back.
I think they got it.
Still the evenet was stupid fun. I would be flat out lying if I said anything else. It was a mini diabetes camp for grownups, not that I actually acted all that grown up. It was also an exhausting three days of time away from home, two of which were spent in a coach seats on very full Airbusses and I didn't have enough episodes of Community on my iPhone to make that time pass pleasantly.
Medtronic didn’t push product. They can't talk about stuff that is into the FDA. We tried to get them to anyway. They looked tempted, but there is stuff they just will not talk about. They did say that CareLink (is that what it is called?) for Apple computers has been blessed and will be announced to the public this week. Maybe even tomorrow. They did share some of their personal stories and connections to type 1. In many cases it is very personal. More on that in a different post.
Will Dubois (in the spirit of full disclosure I think the world of Will aka Lee) and I were laughing on the ride to Medtronic in the morning that we were both kinda surprised to be there. He has been a critic, harsh at times apparently. He has some fairly clear ideas about Luer-Lok that he shared again just in case they forgot. Anyway Will and I talked about the fact that we, as a community, need the durable medical guys. We need them to compete, to be successful and pursue profitable innovative products. Their market success means better care for pumpers. That is the trade off but we have more skin in the game than they do. It is their livelihood, it is our lives.
That we need device manufacturers to be successful and that I would hold back comments in exchange for two days in coach aren’t even anyplace near each other. Still you are free to form your own opinions about that. I hope I continue to earn your trust that: 1) I get around to saying what is on my mind and 2) the time between me saying what is on my mind and the time it gets there is typically nano seconds.
Do I hope Medtronic got good feed back? Yes. I think they did. Do I hope they will do more events like this? Yes. Do I want to go? Oh hell yeah. Did I screw that up by suggesting to one dude that comments about winning in the market place sound like Charlie Sheen? Yeah I did that too.
Why me? Well it probably because it was April Fools and they needed a fool. As for the dark side, nobody claimed to be my dad.
I saw good friends from the Diabetes Online Community, some face to face for the first time. Met some new friends both from the DOC and Medtronic.
There are a couple of thing people ask me about events like this like: "Why you?" and "Are they seducing you to the dark side?" OK the second one doesn't typically get phrased with a fun movie reference but you get the idea.
I don’t know how they chose to invite who they did. It has to be hard. There are a lot of great voices in the DOC, I don't think that mine is any better than a myriad of others and we are not a Medtronic user.
I have traded emails and phone calls with the folks at Medtronic. They once asked if I would consider a post about their Lenny iPod app. I chose not to and shared some of the reservations I had as a parent about the app. They fixed some of the things I was concerned about but I still never wrote about it. (Yes I am an ungrateful arse.) Another time I did write about a driving program they sponsored. That is about it. I don't know why me.
I do think they are nice enough people. They have jobs and selling pumps make the pay checks happen. They seem to do those jobs very well. Except for Jonathan the sensor engineer. He was better than very good as a plant tour guide. If you have a kid who is interested in engineering, find a way to have'm spend time with that guy. He is funny, inspired by machines and process, very personable and a strong communicator. See: more evidence of the dark side, except I don't buy what he builds but man building them is a heck of a thing.
When asked about how they chose who to invite, they said they were looking to hear a variety of voices. They read the DOC daily. They know who's who. I know there were folks invited who couldn't make it. Medtronic did said they were looking for some honest feed back.
I think they got it.
Still the evenet was stupid fun. I would be flat out lying if I said anything else. It was a mini diabetes camp for grownups, not that I actually acted all that grown up. It was also an exhausting three days of time away from home, two of which were spent in a coach seats on very full Airbusses and I didn't have enough episodes of Community on my iPhone to make that time pass pleasantly.
Medtronic didn’t push product. They can't talk about stuff that is into the FDA. We tried to get them to anyway. They looked tempted, but there is stuff they just will not talk about. They did say that CareLink (is that what it is called?) for Apple computers has been blessed and will be announced to the public this week. Maybe even tomorrow. They did share some of their personal stories and connections to type 1. In many cases it is very personal. More on that in a different post.
Will Dubois (in the spirit of full disclosure I think the world of Will aka Lee) and I were laughing on the ride to Medtronic in the morning that we were both kinda surprised to be there. He has been a critic, harsh at times apparently. He has some fairly clear ideas about Luer-Lok that he shared again just in case they forgot. Anyway Will and I talked about the fact that we, as a community, need the durable medical guys. We need them to compete, to be successful and pursue profitable innovative products. Their market success means better care for pumpers. That is the trade off but we have more skin in the game than they do. It is their livelihood, it is our lives.
That we need device manufacturers to be successful and that I would hold back comments in exchange for two days in coach aren’t even anyplace near each other. Still you are free to form your own opinions about that. I hope I continue to earn your trust that: 1) I get around to saying what is on my mind and 2) the time between me saying what is on my mind and the time it gets there is typically nano seconds.
Do I hope Medtronic got good feed back? Yes. I think they did. Do I hope they will do more events like this? Yes. Do I want to go? Oh hell yeah. Did I screw that up by suggesting to one dude that comments about winning in the market place sound like Charlie Sheen? Yeah I did that too.
Why me? Well it probably because it was April Fools and they needed a fool. As for the dark side, nobody claimed to be my dad.
How I Almost Missed My Flight.
... I blame Dunkin Donuts
I had an early morning flight on Thursday to go to the Medtronic social media thing. Being a responsible driver, I stopped for coffee before I hit pre-sunrise traffic. Yes that is how thoughtful of other drivers I am, it had NOTHING to do with MY caffeine addiction.
Me, “‘morningmediumcoffeejustcreamplease”
DD makes a regular with extra sugar.
Me, “This has sugar. Can you make a just cream?”
DD, “You don’t want Sugar?”
Me, “Just cream thanks.”
DD does this a lot. I think I have discovered why. The Just cream was also very lacking in actual coffee goodness. It was the 97 pound weakling on the caffeine muscle beach. Brown warm water that tasted like half the grounds and that had been recycled. Sugar was the only thing that gave it flavor, no wonder they put it in even when you don't want it. Sadly I had hit traffic before this was abundantly clear.
I couldn’t drink it. I am fairly confident that why I missed the turn for the parking lot and ended up on south bound I95. Also I feel it was a contributing factor in misplacing my iPhone in my briefcase. Yes I lost my own phone in my own briefcase going through security. By which I mean that I was in a panic thinking my phone was lost when it wasn’t I was just too insufficiently caffeinated to see it where it was.
I was also too slow to notice I was in terminal B when the big TV screen said A.
I blame Dunkin Donuts. I did my part. I stopped for coffee. They failed. None of this could possibly be MY fault. ;)
I had an early morning flight on Thursday to go to the Medtronic social media thing. Being a responsible driver, I stopped for coffee before I hit pre-sunrise traffic. Yes that is how thoughtful of other drivers I am, it had NOTHING to do with MY caffeine addiction.
Me, “‘morningmediumcoffeejustcreamplease”
DD makes a regular with extra sugar.
Me, “This has sugar. Can you make a just cream?”
DD, “You don’t want Sugar?”
Me, “Just cream thanks.”
DD does this a lot. I think I have discovered why. The Just cream was also very lacking in actual coffee goodness. It was the 97 pound weakling on the caffeine muscle beach. Brown warm water that tasted like half the grounds and that had been recycled. Sugar was the only thing that gave it flavor, no wonder they put it in even when you don't want it. Sadly I had hit traffic before this was abundantly clear.
I couldn’t drink it. I am fairly confident that why I missed the turn for the parking lot and ended up on south bound I95. Also I feel it was a contributing factor in misplacing my iPhone in my briefcase. Yes I lost my own phone in my own briefcase going through security. By which I mean that I was in a panic thinking my phone was lost when it wasn’t I was just too insufficiently caffeinated to see it where it was.
I was also too slow to notice I was in terminal B when the big TV screen said A.
I blame Dunkin Donuts. I did my part. I stopped for coffee. They failed. None of this could possibly be MY fault. ;)
March 30, 2011
Dear Depressed In The West
Kelly Kunik aka K2 has an emotional response to a letter from a reader about diabetes worry. It a great little piece and if you haven't seen it yet go read it now. Anything I have to say, can wait.
So now that you have read it this next bit is redundant because it is my comment there:
So now that you have read it this next bit is redundant because it is my comment there:
I'll jump in with the not particularly sage observation that Diabetes is in fact a rat bastard. It likes to play mind games with the goal of keeping PWD less than they can be.
All too often diabetes care is talked about in terms of numbers and compliance. Who the hell wants to be a number? As for the compliance bit I have seen enough science fiction to know that the robot overlords from outer space want us to be compliant.
Those robots are not the only ones. Yesterday I wrote about The Good, The Bad and The Ugly. I wish I had read this first because I would have cast the idea that diabetes care is about numbers and compliance as The Bad. (MTV's casting call would still be The Ugly.) The Bad doesn't see that living with diabetes takes an emotional toll. The Bad doesn't see the whole person with diabetes. It cuts out the emotions, well except the bad stuff like guilt and depression. I think emotional support is every bit as necessary as insulin and from what I hear around the DOC so do a lot of other people who are smarter than I am.
Don't let the the rat bastard focus on The Bad and The Ugly. You are entitled to have The Good too.
March 28, 2011
Verio 510k Clearance
Anyone know anything about this meter? I was bored and started looking through the FDA 510k approvals. Yeah that bored. Anyway I came across this:
I found an Australian page at: http://www.onetouch.com.au/
DEVICE: ONE TOUCH VERIO BLOOD GLUCOSE MONITORING SYSTEM LIFESCAN, INC. 510(k) NO: K093745106(TRADITIONAL) ATTN: LISA MCGRATH PHONE NO : 408 956 4446 1000 GIBRALTAR DR., MS 2C SE DECISION MADE: 11-FEB-11 MILPITAS CA 95035 6312 510(k) SUMMARY AVAILABLE FROM FDA
I found an Australian page at: http://www.onetouch.com.au/
March 27, 2011
The Good, the Bad and the Ugly
I watched the Indy Car opener toady. Delaney was psyched to see Charlie Kimball’s car. We were all sad to see him leave the race early.
I think he is a roll model for her and a lot of other kids with type 1. I don’t expect many of those kids to have an interest in becoming Indy Car drivers. That isn’t what a roll model is about. Charlie is a roll model because he is living his dream and bringing diabetes along kicking and screaming whether it likes it or not.
Diabetes is a rat bastard. It doesn't want kids with type 1 to dream. It wants to limit and define the lives it touches. Charlie shows that with hard work, character and a Dexcom screwed on the high tech steering wheel of life they can chase down their dream at a few hundred miles an hour. Chasing dreams is more than simply good.
At some commercial break during the race I saw a tweet that MTV is casting a reality bit with someone with diabetes. They are looking for a bad diabetic. Here in part is their casting call:
In reality, we have a choice. We can tune into MTV and wallow in diabetes or what ever the find that limits and defins lives. On the other hand Indy Car has races trough the fall. We can watch Charlie strap the Dexcom to the steering wheel and take diabetes where no one has taken it before. Where fast matters and diabetes doesn't.
Charlie is a rookie in the professional big league of his sport. He is a dedicated, hard working and pleasant. Those traits are the reality of what makes him a roll model.
I am looking forward to the next race. I'll be watching. As for MTV well I will maintain my perfect record of tuning them out. Diabetes isn’t the only thing that wants to limit and define the lives it touches. Unlike being diagnosed with diabetes we have a choice as to what we get on TV.
Use the powers of your remote only for good.
I think he is a roll model for her and a lot of other kids with type 1. I don’t expect many of those kids to have an interest in becoming Indy Car drivers. That isn’t what a roll model is about. Charlie is a roll model because he is living his dream and bringing diabetes along kicking and screaming whether it likes it or not.
Diabetes is a rat bastard. It doesn't want kids with type 1 to dream. It wants to limit and define the lives it touches. Charlie shows that with hard work, character and a Dexcom screwed on the high tech steering wheel of life they can chase down their dream at a few hundred miles an hour. Chasing dreams is more than simply good.
At some commercial break during the race I saw a tweet that MTV is casting a reality bit with someone with diabetes. They are looking for a bad diabetic. Here in part is their casting call:
Does your diabetes hold you back from living the life the way you want? Do you have an extreme form of the disease which requires you to constantly inject yourself with insulin? Does it make you feel different from your peers? How is your situation more difficult than your friends' at school? Are you embarrassed by your diabetes?It sure seems like they are looking to help that rat bastard diabetes limit and define lives. That my friends is just another case of the ugly.
In reality, we have a choice. We can tune into MTV and wallow in diabetes or what ever the find that limits and defins lives. On the other hand Indy Car has races trough the fall. We can watch Charlie strap the Dexcom to the steering wheel and take diabetes where no one has taken it before. Where fast matters and diabetes doesn't.
Charlie is a rookie in the professional big league of his sport. He is a dedicated, hard working and pleasant. Those traits are the reality of what makes him a roll model.
I am looking forward to the next race. I'll be watching. As for MTV well I will maintain my perfect record of tuning them out. Diabetes isn’t the only thing that wants to limit and define the lives it touches. Unlike being diagnosed with diabetes we have a choice as to what we get on TV.
Use the powers of your remote only for good.
March 26, 2011
@CharlieKimball: Go Fast Insulin
We hold theses truths to be self evident; that fast cars are cool. The type 1 community's own professional race car driver Charlie Kimball is racing in his first Indy Car even this weekend driving the Chip Ganassi Racing Levemir and NovoLog FlexPen Honda Dallara. A.K.A No. 83. This is the Big Leagues sports fans.
Here is Charlie in a video he made for theBeteNOW.
24/7 On Track Charlie Kimball from thebetes now on Vimeo.
He will be speeding around the streets of St. Petersburg in the Honda Grand Prix. There is great behavior to teach your insulin using kids to emulate... wait... maybe not so much unless the speeding around the streets is in an actual sanctioned racing event. Better for your car insurance premiums than getting a fist full of tickets - you can tune in on ABC tomorrow at 12:30 pm to watch. Learn more on IndyCar.com.
Delaney and I are looking forward to the watching the race. She as an autographed picture of Charlie on the wall along with other type 1 athletes. He's cool. He goes fast. He is type 1. He signs pictures for kids at Friends For Life. All that and he is crazy nice.
He is also the closest thing to the Stig we've ever met.
You can follow him on Twitter, maybe even Tweet him good luck on his first Indy Car race.
Here is Charlie in a video he made for theBeteNOW.
24/7 On Track Charlie Kimball from thebetes now on Vimeo.
He will be speeding around the streets of St. Petersburg in the Honda Grand Prix. There is great behavior to teach your insulin using kids to emulate... wait... maybe not so much unless the speeding around the streets is in an actual sanctioned racing event. Better for your car insurance premiums than getting a fist full of tickets - you can tune in on ABC tomorrow at 12:30 pm to watch. Learn more on IndyCar.com.
Delaney and I are looking forward to the watching the race. She as an autographed picture of Charlie on the wall along with other type 1 athletes. He's cool. He goes fast. He is type 1. He signs pictures for kids at Friends For Life. All that and he is crazy nice.He is also the closest thing to the Stig we've ever met.
You can follow him on Twitter, maybe even Tweet him good luck on his first Indy Car race.
March 18, 2011
Rx: Kiss-a-Pig
That is official medical advice. Well in so far a doctor suggests, well actually request, it.
The doctor in question is Andreas Stuhr. He is about as nice a guy as I've met and a real good sport. He did a bit for theBetesNOW in German only come to think of it now, I have no idea what he said...
Rumor has it he's been walking around the office in a pig costumer drumming up support for this fund raising event. Nobody should get away with behavior like that without their friends mocking them on the internet. I have spies trying to get pictures and I will post them when and if I get them.
In them mean time, if you are so inclined, join me in chipping in a little.
Rumor has it he's been walking around the office in a pig costumer drumming up support for this fund raising event. Nobody should get away with behavior like that without their friends mocking them on the internet. I have spies trying to get pictures and I will post them when and if I get them.
In them mean time, if you are so inclined, join me in chipping in a little.
March 16, 2011
Tolerx Phase 3 Did Not Meet End Points
From The News Wire: Disappointing news for people hoping for a suppression of the autoimmune causes of type 1. I am not a rocket scientist or expert on how any branch pf science progresses so I look forward to reading what more capable writers have to say. I am sure good friend of the blog Scott Strummello will have enlightening comments when he has had time to get all the facts. In the mean time here is the opening of the recent press statement and a link to the full release.
Tolerx and GlaxoSmithKline Announce Phase 3 Defend-1 Study of Otelixizumab in Type 1 Diabetes Did Not Meet Its Primary Endpoint
CAMBRIDGE, Mass. and LONDON, March 11, 2011 /PRNewswire/ -- Tolerx, Inc. and GlaxoSmithKline (GSK) today announced that the Phase 3 DEFEND-1 study of otelixizumab, an investigational humanized anti-CD3 monoclonal antibody, did not meet the primary efficacy endpoint of change in C-peptide at month 12 in patients with new-onset autoimmune type 1 diabetes.
Following preliminary review of the data, no new or unexpected treatment-related safety concerns have emerged during the DEFEND-1 study. Study investigators and regulatory agencies have been notified of the DEFEND-1 study outcome.
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