May 13, 2013

Oil Change and Tune Up.

This week I am joining Karen and many others in D-Blog Week.

Today's topic is, "Share and Don’t Share"
Our prompt of Today is: 
Often our health care team only sees us for about 15 minutes several times a year, and they might not have a sense of what our lives are really like. Today, let’s pretend our medical team is reading our blogs. What do you wish they could see about your and/or your loved one's daily life with diabetes? On the other hand, what do you hope they don't see?


Oil Change and Tune Up.

We see our diabetes healthcare team four times a year (15 minutes a vista per each). Kind of like an oil change for the kids. The care team changes the insulin cartridge and rotate the sets and we are good for another 3,000 miles. We have a good relationship but our conversations are fairly low key.

I honestly don’t think there is much I wish they were aware of, that they are not, and I don’t think there is anything I hope they don’t see. That said I don’t think we have a typical patient / endo relationship.

Early on I printed out numbers and BG reports. The Dr. asked if I printed them for him or me. “Well. You.” I said, “I thought you needed them.” His response was if I had questions bring them in otherwise don’t bother.  I liked that a lot. I took it as an indication that he trusted us to make the adjustments that were needed to as they were needed and trusted us to decide what he needed to see. (Hint: not much).

I think that is the how our relationship works. They offer suggestions as needed answer questions and we go about our respective business. We at time differ one stuff. For example they are not big CGM fans because most of their patients who have gone on them, come off fairly quickly. That didn’t keep me from asking and getting scripts to try them.

Like others our kids didn't love carrying around the extra CGM stuff. We didn't use them all the time but occasional CGM use still made finding basal patters easier.


Like everyone's, our diabetes has varied. What has been consistent is that our care team is there for us, when we need them, they offer suggestions and trust us to do what we can to manage. That trust was very apparent when our second diagnosis happened. We were on vacation and they trusted us to start care with daily phone calls checking in. They put normal life, in this case the vacation, first and work diabetes into that normal life. That perspective is a great gift and they consistently share that with us. Each visit is an chance to tune up that perspective.

If they read this I hope they know I can’t imaging a better relationship, and even if they don't I feel the same way. LOL.