March 28, 2009

I dount it is this guy anymore..

This was also part of the long ago quest for carb counts at WDW. Disney people move around all the time so I doubt tit is this dude anymore. DisneyWithDiabetes started as a blog before moving to AllEarsNet.com. This bit didn't move. I move information not advocacy (aka whining) to AllEars


This was:

Drop Mark a Letter (2006)

Connor just got out of Children's on Halloween '03 just a few weeks before a BIG Disney trip. (a Big Birthday for Zurgswife a.k.a. ZW.)

On that trip we went through some diabetes newbie experiences. Assuming we could buy a soda when we need to cover a low, instead of carrying a juice box. Loosing a meter etc.

We also found out that Disney Cast Members (employees anyplace else but Mickey calls them CMs) at the rank and file level are spectacular with diabetes assistance if you say "I need help."

Unfortunately we found out they are kind of a pain about carb counts. All you T1 families know the look that asks, "Why are you asking about carb counts? You an Atkins freak?"

Disney is GREAT at many thinks. Carb counting ain't one of them.

Since then I have been trying to get through to a 'suit' to talk about it. I am persistent and motivated. I kept at it off and on for two years.

No luck.

I had phone calls unreturned. I got high and mighty letters patronizing me about the important of them not getting it wrong and my responsibility to get it right for my kids. Oh and the ever popular (raise you hand if you have heard this one T1 families) info on a few sugar free items

50 odd thousand employees. Ya think someone would have a T1 clue.

Well after two years I finally talked to honest to Mickey disability executive.

He said he had never heard a guest asking about carb counts for a T1 kid.

No kidding! Wonder why? Unreturned phone calls and sugar free maybe

Turns out he was a very nice, if well insulated guy. He just needs to hear from more T1 families

So if anyone stumbles onto my little blog and would like to drop the guy a note here's where to send it:

Mr. Mark Jones
Walt Disney World Services for Guests with Disabilities
Box 10000
Lake Buena Vista, FL 32830

2 comments:

  1. I will absolutely contact him. We have been twice already since her diagnosis.

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  2. Penny Starr-AshtonMarch 29, 2009 at 9:07 PM

    Just got back from one week at DisneyWorld with our 6 year old daughter who is Type 1. There was no carb counts in site, let alone other information. I asked and asked and you are right, no one knows anything or they assume you are dieting while at WDW. It was a struggle at times to dose correctly. I will definately contact him about this issue. I think it's a health concern for a family-friendly place such as WDW. Thanks for all your work in trying to locate someone at WDW who might know something. Awareness is the first step, right?! Thanks, Penny

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