Matthew Holt has an interesting piece on The Heath Care Blog about participatory medicine. http://thehealthcareblog.com/blog/2012/09/27/will-partnership-meeting-propel-mass-movement/
Here is my readers digest collection of quotes that show why I found the article worth sharing. I particularly like the last one. It is create a to do for the patient side; talk about what to do not just complain.
"...trying to transform the way doctors and others throughout the health care system relate to every patient with every disease.
"Activists accustomed to being lonely voices crying for change mingled with others who were like-minded, made common cause and laid a foundation, perhaps, for speaking with one voice.
"...a glimpse of what the future might be in health information technology.... a personal health record and an interoperable electronic medical record might be tied together to improve care and lower cost while keeping patients and their families at the center.
“When patients tell their stories, they need to tell us what to do about it.”